Guide for Families

Guide for Families
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  • Cathy Turner
    Cathy Turner
    Cathy Turner is Duchenne Programme and TACT Coordinator at the John Walton Muscular Dystrophy Research...

The Muscular Dystrophy Association, Parent Project Muscular Dystrophy, TREAT-NMD and the World Duchenne Organisation have used updated recommendations, to work together again to produce a 2018 current and comprehensive Duchenne Guide for Families ensuring that the very latest in care standards are accessible to all people living with Duchenne.

To ensure as many people as possible have access to this information we provide the guide in a number of format and also in a number of languages.

1) Download

Download a PDF of the Duchenne Guide for Families 2018 in English. This will soon be available in a number of different languages. 2010 Guides will be replaced by 2018 updates as soon as translations are available.

2) Online (2010 version)

Find out more here about the accessing the 2010 family guide online via devices such as tablets and smartphones as well as desktop machines. The online version of the guide is available in a number of different languages with more in due course.

3) Android app (2010 version)

Here you will be able to find out more about how to access the Android app which is available in both English and German.

07 Sep 2018