SMA Europe

SMA Europe

SMA Europe is an umbrella organisation, founded in 2006, which includes Spinal Muscular Atrophy (SMA) patient and research organisations from across Europe.

Our aims are:

  • to provide a framework to stimulate collaboration,
  • accelerate translational research pathways in SMA,
  • promote patient care.

Co-operation between these European organisations is meant to enhance and support the existing efforts of each association by identifying areas for collaboration that are mutually advantageous:

  • to improve the quality of life of individuals with Spinal Muscular Atrophy,
  • to promote the interests of SMA patients in European health policy;
  • to raise awareness of Spinal Muscular Atrophy (SMA) with the general public, healthcare practitioners, scientists and industry;
  • to identify, develop, promote and implement the best practice for SMA;
  • to promote and sustain scientific and medical research in all fields of Spinal Muscular Atrophy;
  • to increase collaboration between member countries.


Call +44 1789 801159


Vanessa Christie-Brown