Parent Project Association

Parent Project Association

The association was founded in March 2004 by a small group of parents and grandparents of children who were diagnosed with Duchenne muscular dystrophy. The Association For Muscular Dystrophy Research and Assistance is a non-profit making association and is guided by the organisation's president Isabela Tudorache.

Current objective include...

  • Establishing a Resource Center for Muscular Dystrophy and neuromuscular disorders assistance
  • Funding scholarships for the training of Romanian specialists in accredited research centers
  • To promote contact, communication and exchange of valuable information in the field
  • Ensure awareness throughout the medical community

In the immediate future intentions are to initiate a MD Care Act, which will see that DMD/BMD is given the same importance as other diseases.