FSHD Europe

FSHD Europe

FSHD Europe represents those people throughout Europe who are affected by FSHD. Their objectives are...

  • to raise awareness, understanding and knowledge of FSHD.
  • to encourage, promote and share best practice in the care, welfare, support and diagnosis for FSHD affected individuals and their families.
  • to stimulate, encourage and support more research into finding a cure for FSHD.
  • to source and raise funds for FSHD research and appropriate care and support programs.
  • to allocate and manage funds for more FSHD research, more FSHD researchers and appropriate care and support programs,
  • to work with other national and international FSHD and dystrophy organisations,and governments to achieve the objectives of FSHD Europe.


Website www.fshd-europe.INFO