FSH Society

FSH Society

The FSH society is the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. They harness the power and insight of a patient-driven model, as it was founded on a promise between two research scientists with FSHD never to let the disease be forgotten or neglected.

They are solely dedicated to treating and curing FSHD through basic, translational and clinical research. They empower scientists by ensuring access to patients, resources and funds for FSHD research and development. They actualize science – the FSH Society has created and supported nearly every advance in FSHD since the mid-1990’s. They keep patients in the theater of medicine and science.

The FSH Society also empowers patients by ensuring them a voice to convey what it is like to live with muscular dystrophy. We engage and support tens of thousands of patients and their families and friends in thousands of communities worldwide.

Website www.fshsociety.org


Daniel Perez Daniel Perez

Daniel Paul Perez is a graduate of Harvard College. He has an extensive background in software and database design, working on corporate MIS and financial systems, marketing research software and data acquisition. He was chief architect and designer of Oracle's multi-dimensional database application and worked on the Human Genome Project in Massachusetts. He also worked as a database specialist on software designed for monitoring clinical drug trials.  Mr. Perez started his career in neurobiology and muscle research at Harvard. He subsequently moved into large scale information systems and databases developing skills in traditional management information systems as well as large scale databases and software design.

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