DMD Pathfinders

DMD Pathfinders

DMD Pathfinders is a user-led charity run by adults with DMD themselves, which promotes choice and control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK. DMD Pathfinders campaigns for improved standards of health and social care and provides advice, guidance and support to teenagers and adults with Duchenne Muscular Dystrophy on issues such as independent living, housing, employment and welfare rights.


Website www.dmdpathfinders.org.uk

Call +44 1273 252555

 

Jon Hastie Jon Hastie

Dr Jon Hastie is the CEO of DMD Pathfinders, a user-led organisation of adults with Duchenne. He co-founded DMD Pathfinders in 2014 after working for several years on a transition programme for young people with Duchenne and has been a co-researcher on key social studies of adults with DMD.  As an adult with Duchenne himself he has a detailed knowledge of the condition and its physical, social and psychological impacts in adulthood.

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