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8th April 2011
FOCUS ON: specialist neuromuscular training

Specialist clinical training is the cornerstone of best-practice care for neuromuscular disorders, while specialist scientific training is essential for researchers interested in pursuing a career in this area.

The major international neuromuscular conferences run by societies and patient organizations provide regular opportunities to hear the latest updates in neuromuscular research and management, but there are also an increasing number of opportunities for young doctors and researchers to attend intensive short courses in myology or training workshops in specific techniques. International projects such as CARE-NMD and TREAT-NMD also host individual training events focusing on best-practice care in line with international consensus guidelines.

As well as these shorter courses, a number of specialist training programmes and diplomas accredited by national societies and endorsed under schemes such as the European Neuromyology Curriculum are now becoming available. 

In this newsletter we are featuring specialist training events taking place in 2011. Further details about training opportunities across the world can be found in the "training and education" section of the TREAT-NMD website, where a full listing of neuromuscular-related meetings and events is also available. New events can be submitted for listing via this link.

Russian Spring School of Myology 2011
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18-21 April 2011 - Moscow, Russia
This specialist neuromuscular training course for healthcare professionals is open to clinicians from across Russia and other Russian-speaking countries. Designed in the style of the myology summer schools held every year in Paris and London, the aim of the course is not only to provide updates on different aspects of neuromuscular disease care and research but also to encourage networking and communication between different muscle centres and disciplines.

EPNS 2011 specialist workshop:
Advances in diagnosis and treatment of neuromuscular disorders
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10 May 2011 - Cavtat, Croatia
This training workshop for EPNS attendees focusing on advances in diagnosis and treatment of neuromuscular disorders is taking place as part of the 9th European Paediatric Neurology Society Congress. The workshop is being held in association with TREAT-NMD and diseases covered include mitochondrial encephalomyopathies, limb girdle muscular dystrophies, congenital muscular dystrophies, neuromuscular junction disorders and congenital myopathies.

Hands-on workshop on non-invasive outcome measures for NMDs
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16-17 May and 28-29 June 2011 - Paris, France
Two workshops led by outcome measures specialists at the Institut de Myologie will be held in Paris, the first immediately after the Myology 2011 congress and the second immediately after the Paris Summer School. Participants will receive intensive hands-on training in the latest non-invasive outcome measures techniques, including force measurements, activity monitoring, and quantitative NMR techniques (MRI and MRS).

Myograd Berlin Summer School of Myology:
basic muscle research
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13-17 June 2011 - Berlin, Germany
The sister course to the more clinically oriented Paris Summer School, this annual five-day course focuses on basic muscle science and will take place at the Max-Delbrück Center for Molecular Medicine in Berlin. More than 30 teaching units will cover the whole field of basic muscle research, from muscle development to the design of novel therapies for neuromuscular disorders.

London Update in Neuromuscular Disorders 2011
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13-16 June 2011 - London, UK
This established paediatric and adult course is now in its fourth year. Disorders covered include DMD, the myotonic dystrophies, FSHD, LGMDs, inherited muscle channelopathies, mitochondrial diseases, CMT, amyloid neuropathies, drug-induced neuropathies, genetic motor neurone diseases, inflammatory demyelinating neuropathies, inflammatory muscle diseases, and inclusion body myositis. Special topics include psychological, cardiac and pain issues.

Paris Summer School of Myology 2011
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20-28 June 2011 - Paris, France
This condensed 7-day course in myology is held in June each year and is open to students from across the world. It is taught in English and consists of an intensive series of lectures and interactive workshops. Since its inception in 1998, over 400 students from 55 countries have received specialist myology training at this unique and highly regarded event.

EPNS training course - neuromuscular disorders
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27-28 June 2011 - Moeciu, Romania
The European paediatric neurology society (EPNS) has been organizing training courses in paediatric neurology since 2003 aiming at trainees and also qualified paediatric neurologists who want to refresh their knowledge on certain topics. This specialist neuromuscular course consists of plenary morning sessions with presentations on neuromuscular topics, followed by workshop sessions in the afternoon including case presentations and discussions.

WMS satellite teaching course
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17-18 October 2011 - Lisbon, Portugal
The aim of this course is to improve the diagnostic competence of professionals dealing with patients with neuromuscular diseases. With a target audience of both practising and training medical specialists, the emphasis of the course will be on the clinical approach to patients who present with symptoms of weakness and the interpretation of the muscle biopsy. The course will be entirely practical and case reports will be presented to highlight key clinical concepts.

EVELAM - the Latin American Summer School in Myology
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8-10 December 2011 - Sao Paulo, Brazil
EVELAM, the Escuela de Verano Latino-Americana de Miologia or Latin American Summer School in Myology, is an annual short course in myology modelled on the Paris summer school that rotates through the countries of South America. Each course is arranged with the active support of local organizers in its host country and draws in 100-120 participants on average. This year's course will take place in Sao Paulo, Brazil.

TREAT-NMD training course report:
DMD care standards training in Romania
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In cooperation with the Pediatric Neurology Clinic at the Alexandru Obregia Clinical Hospital in Bucharest and the Romanian parent project organisation, the European Neuromuscular Centre (ENMC) organized a training course on behalf of TREAT-NMD entitled "Standards of care in the management of people with DMD" on March 18, 2011.

Update on TRAIN-NMD: a proposed training network
for translational scientists working on NMDs
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In January 2011, TREAT-NMD partners submitted an application to the European Union for a "Marie Curie initial training network" to train the next generation of researchers in the neuromuscular field and to further advance the successful development of therapies for NMDs.

This international training project will consist of individual research projects to advance knowledge and facilitate therapy development, complemented by specialist training to supply the researchers with the knowledge and expertise required to move the neuromuscular field forward and to become the future leaders of the field. These translational scientists will become be well versed in basic knowledge of NMDs and the development of treatments from in vitro proof of concept studies, through animal studies, to setting up and conducting clinical trials and bringing a treatment into the clinic. They will also be trained in intellectual property, ethical issues, regulatory issues, entrepreneurship, management and communication with patients.

The Marie Curie scheme is highly competitive, but the applicants feel they have submitted a strong and extremely relevant and timely proposal. The outcome of the application should be known in September 2011.

Upcoming meetings
Past newsletters
TREAT-NMD conference 2011
8th April 2011
TREAT-NMD newsletter no. 98
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