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20th May 2011
Early-bird rate extended!

The early bird rate for the TREAT-NMD conference has been extended to 15th June to allow as many people as possible to take advantage of the lowest rate available.

Moscow myology spring school brings together clinicians from across Russia

The value of networking between scientists and clinicians was at the heart of the '2nd Spring School of Myology' in Moscow.

From 18-21 April 2011, more than 90 clinicians, scientists and health professionals met at the Russian Academy of Civil Service in Moscow to take part in the second Spring School of Myology. As encouraging proof of the growing interest in neuromuscular research and care throughout Russia, a particular feature of this year's course was that as well as the core of participants from Moscow itself, 11 attendees travelled from St Petersburg and 29 from other regions of the country, including three from Vladivostok, one from Kharkov, and one from Kazan.

The course gave participants with a special interest in the field of neuromuscular disorders the opportunity to exchange experiences, network and set up collaborations. The inspiring programme was developed by a Russian/French scientific committee under the leadership of Dr Andoni Urtizberea and consisted of three days of intensive training in clinical and genetic aspects of a broad range of conditions, with a particular focus on the muscular dystrophies, myotubular myopathies and peripheral neuropathies. The course was organised by the patient organisation Nadezhda, the Moscow Region Paediatric Psychoneurological Hospital No.1 and the Moscow Research Institute of Pediatrics and Child Surgery, in collaboration with the ENMC for TREAT-NMD.

Click the "more" link to view the full report.

Australasian Neuromuscular Network (ANN) is officially launched
during the Australian Rare Disease Symposium
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The Rare Disease Symposium held recently in Fremantle, Western Australia, was the ideal setting to officially launch the Australasian Neuromuscular Network (ANN). The ANN is committed to achieving health equity for the more than 20,000 individuals living in Australia and New Zealand who are affected by neuromuscular disorders. The network was officially launched in front of an audience of patients, parents, advocacy groups, government and industry representatives, researchers and health professionals.

The ANN has also joined with the European neuromuscular initiative TREAT-NMD, allowing Australia and New Zealand to gain from and contribute to global efforts in this area. The recently established Australian Duchenne muscular dystrophy (DMD) registry connects Australian and New Zealand DMD patients with more than 10,000 patients worldwide across more than 30 countries. The ANN will promote integrated training programs for clinicians and researchers, and will also provide a single voice to advocate for patients and their families. The diagnosis, prevention and treatment of neuromuscular disorders will benefit greatly from this integrated and united national approach.

International conference on muscle wasting
18th - 23rd September 2011, Ascona, Switzerland
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The International Conference on Muscle Wasting scheduled for 18th - 23rd September will take place in Ascona, Switzerland. Registration opens on June 1st for those who have had their abstracts accepted and others who have expressed an interest in attending.

Places are strictly limited to 120 with organizers expecting demand to exceed supply. If you wish to attend this conference we recommend that you visit the conference website where you will be able to find information about the programme and also up to the minute information about registration.

PPMD Connect conference - early-bird registration ends 1st June
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The PPMD Connect conference this year will take place 7th - 10th July in Baltimore, Maryland, with the early-bird registration fee ending on June 1st.

This annual conference has been part of the Duchenne landscape for almost twenty years now. What started off as a few families that got together to discuss various topics surrounding DMD has now grown into an event that sees over 500 families attending from around the world.

Upcoming meetings
Past newsletters
TREAT-NMD conference 2011
20th May 2011
TREAT-NMD newsletter - 20th May 2011
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