Standards of care for DM1

Standards of care for DM1
Consensus-based care recommendations for adults with myotonic dystrophy type 1.

Neurology: Clinical Practice October 2018 vol. 8 no. 5 1-14

Myotonic dystrophy type 1 (DM1) is a severe, progressive genetic disease that affects between 1 in 3,000 and 8,000 individuals globally. No evidence-based guideline exists to inform the care of these patients, and most do not have access to multidisciplinary care centers staffed by experienced professionals, creating a clinical care deficit.

The Myotonic Dystrophy Foundation (MDF) recruited clinicians from the United States, United Kingdom, Canada, and Europe who have experience in the treatment of individuals living with DM1 to develop consensus-based care recommendations.

Further information about how the academic article was developed and the resultant clinical resources can be found on the Myotonic Dystrophy website.


17 Oct 2018