Anna Kole

EURORDIS

Anna Kole

Anna Kole is Registry and Biobank Projects Manager at the European Organisation for Rare Diseases (EURORDIS), a non-governmental patient-driven alliance representing the voice of people affected by rare diseases throughout Europe.  She manages EURORDIS' participation in projects focused on patient registries, biobanks, clinical bioinformatics, and –omics in an effort to empower patients and their representatives as active participants in the research process.