Science and Technology Advisory Council - STAC

Science and Technology Advisory Council - STAC

The STAC comprised of a number of independent worldwide recognised scientists and industrialists whose role was to monitor the neuromuscular diseases research of the partners and benchmark it against the worldwide state-of-the-art.

The STAC also suggested methods to improve the efficiency of the research and the transfer of new knowledge to industry.


Ségolène Aymé Ségolène Aymé

Director of Research at INSERM - Orphanet

Ségolène Aymé is a medical geneticist, Director of research at the French Institute of Health and Medical Research (INSERM). She is the executive manager of the INSERM department dedicated to information on rare diseases in Paris.

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Marianne de Visser Marianne de Visser

Neurologist, Professor of Neuromuscular Disorders - Amsterdam Medical Centre

Marianne has been the leader of the neuromuscular group at the Academic Medical Centre in Amsterdam in the Netherlands for more than 20 years.

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Call +31-20-5663445


Kenneth  Fischbeck Kenneth Fischbeck

Branch Chief - National Institute of Neurological Disorders and Stroke

Kenneth is Chief of the Neurogenetics Branch at NINDS and a TREAT-NMD STAC member.

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Call 1-301-435-9318


Roland Foisner Roland Foisner

Univ. Prof. - Medical University of Vienna

Chair of the Division of Molecular Cell Biology, Department of Medical Biochemistry, and Medical University Vienna.

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Call +43-1-4277-61680


Pat Furlong Pat Furlong

CEO - Parent Project Muscular Dystrophy

Pat Furlong is the Founding President and CEO of Parent Project Muscular Dystrophy (PPMD) which she founded together with other parents of young men with Duchenne in 1994.

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Krzysztof Jagla

Research Director in INSERM's U384 Laboratory and Coordinator of MYORES - Parent Project Muscular Dystrophy

Research Director in INSERM's U384 Laboratory and Coordinator of MYORES.

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Christophe Marcelle

Sub-Coordinator of MYORES - Parent Project Muscular Dystrophy

Sub-Coordinator of MYORES

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John Porter John Porter

Chief Science Officer, Myotonic Dystrophy Foundation - Parent Project Muscular Dystrophy

Program Director for Neuromuscular Disease at the National Institute for Neurological Disorders and Stroke (NINDS), which is an institute of the US National Institutes of Health (NIH).

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Boris Sustarsic Boris Sustarsic

Drustvo distrofikov Slovenije