Patient organizations

Below you will find a list of all patient organizations and support groups that specifically focus on Becker muscular dystrophy. This list deals exclusively with BMD.

However, many of the Duchenne muscular dystrophy organizations also cater for those with BMD and a list of these can be found here. Additionally there are larger organizations that deal with all neuromuscular diseases including BMD are listed on the following page.

Whilst we try to ensure this is a comprehensive list of organizations, there may be times when one is accidently excluded. If you know of an organization that you think should be included here please complete the submit organization's details form.

Becker MD Becker MD

This American website contains videos on Becker Muscular Dystrophy from medical conferences. There are numerous forums to exchange ideas about new research into BMD, hot topics in BMD and information for newly diagnosed patients.

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Becker United Becker United

This is a web based group setup by and for people with Becker Muscular Dystrophy  to provide a means for people affected by BMD to talk to each other to share ideas,experiences and help break the isolation frequently felt, new members are always welcome.

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Duchenne Parent Project Spain.


Duchenne Parent Project Spain is a non-profit ong created in 2008 by parents of children affected by Duchenne muscular dystrophy. We work to find a cure or treatment for Duchenne and Becker muscular dystrophy and improve the quality of life for those affected and their families by promoting and financing research clinic, psychosocial care services, awareness campaigns and educational programs.

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12 Apr 2017