DMD Guide for Families
Latest!
New 2018 DMD Guide for Families now available in US & UK.
TREAT-NMD Conference
Registration is now open for the 6th TREAT-NMD International Conference
Post marketing surveillance
Collection of safety and efficacy data once a drug has received conditional marketing approval
Publications
Latest publications!
Care guidelines for DMD & SMA - significant updates published
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Trial sites and patients, advisory support, study support, training
Disease information
Myotubular and centronuclear myopathy disease section now live!
TACT
TREAT-NMD Advisory Committee for Therapeutics - application & review process, past reviews, committee etc
BioBanks
A unique network of biobanks storing quality DNA, cell & tissue samples on rare diseases and NMDs
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- Updated Standards of Care for Myotonic Dystrophy (DM1) Care standards are intended to help standardise and elevate care for the DM1 patient...
- TREAT-NMD 2019 Conference - Registration Now Open! The TREAT-NMD Alliance is delighted to announce that registration for the 6th TREAT-NMD conference, taking...
- New Blog - How a fake medicine can be useful - Professor dr. Annemieke Aartsma-Rus This month, Prof. dr Annemieke Aartsma-Rus shares her thoughts on the EURO-NMD European Reference Network Summer School...
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- Orphan Drug Congress
17 -18 Jun 2019 With the accomplishment of preceding Rare Diseases Congress in 2018,... - 2019 National Limb Girdle Muscular Dystrophy Conference
30 Aug 2019 - 2 Sep 2019 This is the first national conference dedicated to all forms... - 6th TREAT-NMD International Conference
9 -11 Dec 2019 REGISTER TODAY: https://treat-nmd-conference.org/registration/ Dear Friends and Colleagues,The TREAT-NMD Alliance is organising its... - See All Events
